FIRST officially launched its own Research Grant Program in early 2006. Our grant program promotes and strengthens investigation into the causes, treatments, and potential cures for ichthyosis. With the adoption of this program, the Foundation manages the entire program through the national office. Guided by the Foundation's Research Committee, which is comprised of knowledgeable physicians, scientists, and Foundation leaders, the office administers the annual granting program. Surveys of the ichthyosis community, specifically individuals affected with ichthyosis and their families, have indicated that research is their primary area of interest and their top priority for funds donated to the Foundation. In response to this, the Foundation has initiated this program to promote promising avenues of research by investigators who have a new or established interest in ichthyosis.

Letter of intent process.

Foundation for Ichthyosis & Related Skin Types ® (FIRST) is now accepting letters of intent for the 2022 Research Grant Program. Investigations into all forms of ichthyosis are welcome.  Pilot awards will be offered for up to $15,000 for one year. Research grants will be rewarded for up to $50,000 for year one, with potential for a second year of funding with evidence of adequate progress and available funds. Investigators are encouraged to utilize the National Registry for Ichthyosis and Related Skin Disorders when appropriate.

All letters of intent (one page maximum) will be reviewed by FIRST’s Research Review Committee; investigators will be notified if they are invited to submit a full proposal.

  • March 1, 2022 - Letters of intent are due to FIRST
  • April 1, 2022 - Invitation to submit full application emailed to investigator
  • May 1, 2022 - Full grant application due to FIRST
  • August 31 , 2022 - Notification of award

For additional information contact:

Christine Wassel, Community Engagement Director
Foundation for Ichthyosis & Related Skin Types

PO Box 1067
Lansdale, PA 19446

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