Our CEO Chris Boynton and two ichthyosis experts explain what it means to give to FIRST.


FIRST is the only global nonprofit dedicated to finding cures and improving lives for those affected by ichthyosis and related skin types. 

There are more than 25 types of this disease, and approximately 200-300 moderately to severely affected births a year in the US. With so few born, and so much variability, the community desperately needs education, connection, and inspiration. Many people struggle with affording or finding knowledgeable and effective medical care. Misdiagnosis is common, and there are currently no FDA-approved treatments. There are just a few dozen doctors with clinical expertise in these diseases.

Your dollars go toward urgently needed help for individuals and families. Our Physician Finder, virtual and in-person programs, and financial aid programs educate, inspire, and connect families to life-changing resources. We sponsor academic research, and have been deeply involved in pushing forward new pharmaceutical research. 

We could not do this without you.

Share This Page: