The Pachyonychia Congenita Project (PC Project) was launched in 2003 with the mission statement, "Find a cure for PC." The PC Project is enthusiastically supported by the Pachyonychia Congenita Fund, a charitable organization established by the Schwartz family of Salt Lake City, Utah.

The PC Project will provide research grants and Career Development Awards, host research symposiums, sponsor a PC registry, foster a PC community, support genetic testing, and take other active steps towards achieving the mission statement.

Pachyonychia Congenita (PC) is a rare genetic skin disorder characterized by thick, discolored nails, as well as calluses and blisters on the hands and feet. Other symptoms include a whitish tongue, wart-like bumps on the body, cysts, and sometimes hair and laryngeal changes. PC is often listed with other scaly skin disorders and is also sometimes classified as an ichthyosis. Though often viewed as primarily a nail disorder, frequently the major challenge of PC is walking with constant pain. The nails become infected at times and are also very painful.
 

Their website serves as an information and communication tool for doctors, clinical researchers and PC patients.

To access the website, visit www.pachyonychia.org