It only takes one day to make a difference to the ichthyosis community. That's 24 hours to help connect families of this rare skin condition; 1,440 minutes to raise awareness of ichthyosis and the FIRST  community.

Every time we work with a FIRST member to plan a grassroots fundraising event, we are in awe of their creativity and passion. Each event we plan is more ingenious than the next! From FIRST Nights Out with a local baseball team to bake sales, car shows, or pumpkin painting, I love to see how our grassroots organizers plan an event that also speaks to their own personal passions and interests.

Tracie Pretak, organizer of the Release the Butterfly tour said it best. “I love to sing, Bailey loves to dance and we both love FIRST. That’s why developing a musical tour as our fundraiser works for us. If I was to plan a golf outing, I would not be as passionate. Golf is not my forte,” said Pretak. 

Regardless of your interest, you and FIRST can work to come up with a way it can tie into a fundraiser. The most important thing to have as a grassroots organizer is the desire to help FIRST and the ichthyosis community. So, what can you do in 86,400 seconds? Contact Denise Gass, today and we can start planning your next fundraiser for FIRST.