Rare Disease Day 2015!
February 1, 2015 - Rare Disease Day is observed on the last day of February to raise awareness for rare diseases and improve access to treatments for individuals with rare diseases and their families Read More
Announcement from GeneDX
June 5, 2014 - Congenital ichthyosis and related disorders of cornification of the skin are a clinically and genetically very heterogeneous group of genetic disorders. Read More
FIRST Announces our YAWI Group!
September 3, 2013 - A YAWI is a Young Adult With Ichthyosis between the ages of 18 – 30. This is an important age as many life-altering decisions may be made during young adulthood. Read More
The Facts About Ichthyosis
February 25, 2013 - FIRST created information dispelling the myths associated with ichthyosis for members of the media as a quick reference. Our friends and members can also make use of this. Read More
What is Your Itch Tip?
February 18, 2013 - Members and friends are always seeking tips for managing their skin. With the winter weather, skin becomes even more itchy. Read More
Ichthyosis and Dogs
January 14, 2013 - Throughout the year, FIRST receives a number of emails from dog owners trying to find help for their dog affected with ichthyosis. Read More
A Dream Fulfilled with Hard Work
January 10, 2013 - Valerie is in inspiration to everyone. With hard work, determination, and a positive attitude, you can accomplish whatever you put your mind to. Read More
Yoga for Your Skin
January 7, 2013 - Yoga is widely recognized as a practice that will build muscle, increase joint flexibility, improve core strength, relax the overactive mind, and release tension. Read More
Nutrition and Ichthyosis
Because the skin is the largest organ of the body and because it has a very large surface area in contact with the environment, what happens to the skin has a significant impact on the whole body. Read More