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2016 National Conference Reservation Information
It’s not early to start planning for the 2016 National Family Conference-San Diego! We’ve already selected a city and location. Read More
2016 National Conference Reservation Information
FIRST Goes to Camp Horizon!
August 21, 2015 - FIRST staff members volunteered at Camp Horizon and joined the amazing staff and volunteers in Millville, PA for an exciting day of games and crafts. Read More
FIRST Goes to Camp Horizon!
National Conference Financial Aid Application Now Available
August 12, 2015 - A financial aid fund is available for families to apply for financial assistance to attend FIRST National Conferences. Funding is limited. Read More
National Conference Financial Aid Application Now Available
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
August 1, 2015 - The fight against ichthyosis is not only medical but also financial. Daily treatment routines can be complicated by the ongoing costs of medical supplies and other aids. Read More
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
Newborn Study at Yale University
July 30, 2015 - A study of newborns with ichthyosis. Read More
Newborn Study at Yale University

 



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