Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Losing the Fear of Never Being Loved
May 15, 2013 - I know that I am very blessed. I was given every opportunity to grow up as normal as possible. My parents encouraged me to do and try anything that I wanted to do. Read More
A New Beginning
May 13, 2013 - "...pursue the dreams that have taken root in your heart. It's never too late to change." Read More