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Latest Research on Treatment for Infection Related to Keratitis-Ichthyosis-Deafness (KID syndrome)
January 20, 2015 - KID syndrome is a rare hereditary cornification disorder resulting from mutations in connexin 26, a protein important for intercellular communication. Read More
Latest Research on Treatment for Infection Related to Keratitis-Ichthyosis-Deafness (KID syndrome)
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
January 1, 2015 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices. Read More
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
FIRST Research Grant Awarded to Dr. Ryan O’Shaughnessy, UCL Institute of Child Health, London, UK
December 16, 2014 - The research specifically focuses on understanding the mechanisms that cause scaling, and subsequently increasing the options for treatment. Read More
FIRST Research Grant Awarded to Dr. Ryan O’Shaughnessy, UCL Institute of Child Health, London, UK
Rare Disease Day 2015!
December 11, 2014 - Rare Disease Day is observed on the last day of February to raise awareness for rare diseases and improve access to treatments for individuals with rare diseases and their families Read More
Rare Disease Day 2015!
Participants needed for “Itch” Study at Temple University
December 10, 2014 - The purpose of this research study is to examine the genetic differences involved with itch in atopic eczema, psoriasis, and ichthyosis patients. Read More
Participants needed for “Itch” Study at Temple University

 



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