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Rare Disease Family Camp Offered!
April 13, 2016 - The Hole in the Wall Gang Camp is partnering with NORD to offer the first-ever Rare Disease Family Camp. Read More
Rare Disease Family Camp Offered!
Darier-White / Hailey-Hailey Disease Patient Recruitment
March 22, 2016 - Have you been diagnosed with Darier-White or Hailey-Hailey Disease? If so, you may be eligible to participate in a clinical research study! Read More
Darier-White / Hailey-Hailey Disease  Patient Recruitment
From Difficult Case to New Syndrome
February 23, 2016 - When Keith Choate, MD, PhD speaks about his research program to identify and understand new genetic causes of ichthyosis, he always begins by discussing the importance of genetics Read More
From Difficult Case to New Syndrome
FIRST CELEBRATES 35 – Interview with CEO Jean Pickford
February 10 - I was hired in June of 1999, which was 16 years ago. Wow! Time goes too fast. Read More
FIRST CELEBRATES 35 – Interview with CEO Jean Pickford
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
February 1, 2016 - The fight against ichthyosis is not only medical but also financial. Daily treatment routines can be complicated by the ongoing costs of medical supplies and other aids. Read More
Diya & Aliya's Friends Skin Care Fund is now accepting applications!

 



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