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Ear Related Symptoms Survey Results Published
March 23, 2014 - During 2012-2013, the doctors at Boston Children’s Hospital, conducted a pilot survey study to obtain information about ichthyosis and its ear-related symptoms. Read More
Ear Related Symptoms Survey Results Published
Tapping Local Media for Grassroots Events
March 23, 2014 - any members of the FIRST community are enthusiastically raising awareness by planning unique and exciting events throughout the entire month. Read More
Tapping Local Media for Grassroots Events
2014 RARE Disease Day Activities
March 13, 2014 - FIRST and our members worked hard creating awareness for rare disease. Read More
2014 RARE Disease Day Activities
The National Health Council’s 27th Annual Voluntary Health Leadership Conference
March 13, 2014 - The 27th Annual Voluntary Health Leadership Conference brought together nearly 80 senior staff and volunteer leaders from 32 of the NHC’s member patient advocacy organizations. Read More
The National Health Council’s  27th Annual Voluntary Health Leadership Conference
The National Health Council (NHC) Launches New Tools for Navigating the Health Care Marketplace
January 30, 2014 - Choosing a healthcare plan in the new marketplace can be tricky. However, finding a plan that is best suited for your health care needs is key to a healthy future. Read More
The National Health Council (NHC) Launches New Tools for Navigating the Health Care Marketplace

 

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