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FIRST & Award-Winning Photographer Produce FRAME Film on World Rare Disease Day
February 16, 2015 - FIRST will be the center focus of the FRAME (Faces Redefining the Art of Medical Education) film project, created by photographer Rick Guidotti, founder of Positive Exposure. Read More
FIRST & Award-Winning Photographer Produce FRAME Film on World Rare Disease Day
Boston Children's Hospital Conducting a Harlequin Ichthyosis Study
February 9, 2015 - Boston Children's Hospital is conducting a medical records study of people with harlequin ichthyosis. Read More
Boston Children's Hospital Conducting a Harlequin Ichthyosis Study
Patient Support Forums are Taking Place Throughout the Country!
February 3, 2015 - Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community. Read More
Patient Support Forums are Taking Place Throughout the Country!
UFIRST Scholars Program 2015 Applications Now Available!
February 1, 2015 - An opportunity for students affected with a form of ichthyosis or a related skin type to achieve their highest educational potential. Applications are now available. Read More
UFIRST Scholars Program 2015 Applications Now Available!
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
February 1, 2015 - The fight against ichthyosis is not only medical but also financial. Daily treatment routines can be complicated by the ongoing costs of medical supplies and other aids. Read More
Diya & Aliya's Friends Skin Care Fund is now accepting applications!

 



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