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Latest News
Awareness All Year-Round
Pittsburgh resident Hunter Steinitz has been very busy lately!
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A new appointment for FIRST’s Executive Director
Jean Pickford appointed to NIAMS Advisory Council.
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2010 Family Conference Highlights
The 2010 FIRST National Family Conference was recently held in Orlando, Florida. As expected, this was the best attended and most exciting conference to date!
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The FIRST offices have moved!
FIRST has grown so much in the past few years, we need more space.
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Educational Scholarships Available
Friends of FIRST will soon be able to apply for scholarships to help offset educational expenses.
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More News and Events:
FIRST Staff Spends the Day at Camp
The Maury Povich Show (2002)
Ichthyosis Awareness Week
Ichthyosis Research Pioneers Honored in Miami
Michael Briggs Honored at Testimonial Dinner
Regional Meetings
National Family Conferences
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