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National Conference Registration Deadline is June 8!
Just 4 weeks until the National Conference - San Diego. Don't wait. Registration closes June 8. Read More
National Conference Registration Deadline is June 8!
District Donuts & Step2 Team up to Raise Awareness
District Donut Shop in Washington DC & Step2 are holding a fundraising, till May 31, 2016. #ichthyosisawarenessmonth Read More
District Donuts & Step2 Team up to Raise Awareness
5/22 - FIRST to Know Conference Call, Occupational & Physical Therapy
The FIRST to Know calls are a great way to “meet” other families, individuals, and medical experts. Each call is centered on a topic or subject, and lasts for one hour. Read More
5/22 - FIRST to Know Conference Call, Occupational & Physical Therapy
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
May 1, 2016 - FIRST members can apply for funding for skin care supplies, treatments, and/or cooling devices. Read More
Jane & Henry Bukaty Skin Care Fund Applications are now being accepted
Rare Disease Family Camp Offered!
April 13, 2016 - The Hole in the Wall Gang Camp is partnering with NORD to offer the first-ever Rare Disease Family Camp. Read More
Rare Disease Family Camp Offered!

 



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