Celebrating Our Anniversary
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
News and Events
Latest News
We Have Come to Embrace Ichthyosis…
May 17, 2013 - It could have been so much worse and we have come to embrace ichthyosis for what it is. Read More
May 17, 2013 - It could have been so much worse and we have come to embrace ichthyosis for what it is. Read More
Losing the Fear of Never Being Loved
May 15, 2013 - I know that I am very blessed. I was given every opportunity to grow up as normal as possible. My parents encouraged me to do and try anything that I wanted to do. Read More
May 15, 2013 - I know that I am very blessed. I was given every opportunity to grow up as normal as possible. My parents encouraged me to do and try anything that I wanted to do. Read More
A New Beginning
May 13, 2013 - "...pursue the dreams that have taken root in your heart. It's never too late to change." Read More
May 13, 2013 - "...pursue the dreams that have taken root in your heart. It's never too late to change." Read More
Yale Conducting Study of a New Topical Medication
May 7, 2013 - A clinical study to investigate a new topical medication for patients with Netherton syndrome will be conducted at Yale University and Saint Louis University Read More
May 7, 2013 - A clinical study to investigate a new topical medication for patients with Netherton syndrome will be conducted at Yale University and Saint Louis University Read More
Patient Support Forum Planned for Dallas
May 2, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
May 2, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
