Date: 11/29/2012

"It was such a rewarding experience” ...  “I was so touched by everyone’s generosity”  …  “I never thought I could make a difference" 

These are just a few of the comments made by FIRST members after they’ve hosted a grassroots fundraiser. As always, the most difficult step in hosting a fundraiser was deciding to have one in the first place. The FIRST office will work with you every step of the way, from providing you with awareness materials, to helping to publicize your event, to even suggesting ideas for the event itself.

All members, in their own way, can positively affect the lives of those with ichthyosis by hosting a fundraiser. The event not only raises money for FIRST, but it also raises ichthyosis awareness in the community that you live in. Awareness helps all of us by alerting others of this rare set of diseases. Maybe one of the people in the room will help to fund the next advancement in ichthyosis research, or will make a significant donation…you never know.  On top of all that, it is such a rewarding experience for the host. We have heard it over and over again. In fact, many members sign up to do it again before the current event is even over!

During our National Family Conference, we spoke with a member from California, who hosted a fabulous silent auction and dinner. She said that she cried after the event thinking, “How can $10,000 possibly help?” As Dave Scholl, FIRST’s President said, “$10,000 is 10% of our total grassroots budget. It’s a very big deal!”

For bigger fundraisers that involve a lot of credit or debit transactions, consider using our card swipers. FIRST has four card swipers that can be sent to you in time for your event. If you have a smart phone (iPhone or Droid) or an iPod or iPad, all you need to do is download the app and start processing your transactions on your very own device.
These swipers were first used at the Dane’s Friends for FIRST Concert held in September. Suzanne Phelps commented that they made the check out process much faster and smoother and emailed receipts immediately.

If you’d like to host a grassroots fundraiser for FIRST, please contact Chris at or call her at 215-997-9400.  Hosting a grassroots fundraiser is a lot of fun and so rewarding. For more information please visit FIRST's Grassroots Fundraising page
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