Date: 07/21/2020

Dr. Amy Paller and Northwestern University/Lurie Children’s Hospital would like to invite you to participate in our research studies on ichthyosis. These studies involve completion of online surveys and more information can be found below.

If you are an adult with ichthyosis, please consider participating in our survey study on quality of life:

Adult link:

https://redcap.nubic.northwestern.edu/redcap/surveys/?s=4H9NPHYPHW

If you are a parent/caregiver of an adolescent 12 years old and older with ichthyosis, please consider participating in our survey study on disease knowledge. There are surveys for both the parent/caregiver and adolescent.

Parent link:

https://redcap.nubic.northwestern.edu/redcap/surveys/?s=DXHCDA7RFL

Child link:

https://redcap.nubic.northwestern.edu/redcap/surveys/?s=3CMJNR7MLJ

If you are a parent/caregiver of a child 8 years and older with ichthyosis, please consider participating in our survey study on bullying. There are surveys for both the parent/caregiver and child. 

Parent link:

https://redcap.nubic.northwestern.edu/redcap/surveys/?s=4HHHR9HXTH

Child link:

https://redcap.nubic.northwestern.edu/redcap/surveys/?s=JRRTEF3AT3

 

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