Date: 05/07/2019

The PaTH Clinical Data Research Network is conducting a research study and wants to know about patients’ experiences with health and illness. By sharing these stories with researchers, we hope to focus research on topics that are of importance to patients and likely to improve health and health care. Using MyPaTH Story Booth patients can record a conversation to share with researchers. We’d love to hear your point of view.

How: Share your story by phone or in person at the Falk Medical Building Lobby

Who: If you are 18 years or older and able to read and understand English you may be eligible

Phone: 412-864-3025

Email: mystory@pitt.edu

Facebook: MyPaTH Story Booth Twitter: @ThePaTHNetwork

Many people do not understand the challenges that individuals with ichthyosis or other related skin types face; we hope that the Story Booth project can help combat that problem by amplifying the voices of individuals and families who are dealing with ichthyosis. Stories are conveniently collected over the phone and take about 45 minutes to complete.

Story Booth stories can...

  1. Draw attention to people's experiences as patients or caregivers in the health care setting and/or help people learn more about ichthyosis or other related skin types.
  2. Give a voice to people who are under-represented or under-served by the research community
  3. Inspire research projects that try to improve the way health care is delivered
  4. Support  FIRST's advocacy missions (we share stories back to partnering community groups when storytellers indicate an interest in doing so)

Our project is funded by the Patient-Centered Outcomes Research Institute to develop an online searchable story archive that empowers patients and aims to foster more patient-centered healthcare. We hope you will consider partnering with us! Just reply to this email for more details or to set up a call to discuss.

For more information about participating in MyPaTH Story Booth, email mystory@pitt.edu

Download the MyPaTH flyer here.

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