Date: 06/21/2017

With a mix of sadness and gratitude, the Foundation for Ichthyosis and Related Skin Types, Inc., announces that Jean Pickford recently resigned as Chief Executive Officer to pursue a career goal of starting her own consultant service. In almost 18 years with FIRST, Jean oversaw the growth of the organization into the premier resource for families affected by ichthyosis. Jean has played a pivotal role in establishing the FIRST Research Grant Program, which has funded over $1.7 million in ichthyosis research grants since 2006. Jean was also instrumental in developing FIRST’s Tele-Ichthyosis Portal, an online service connecting healthcare practitioners with a world-renown team of ichthyosis medical experts. We are all grateful for Jean’s passion, enthusiasm and leadership. We wish her success in her new endeavor.

We are pleased to announce that Moureen Wenik, FIRST Director of Programs and Research, has been promoted to Acting Executive Director.  Moureen has been with FIRST since 2007 and we are confident that her unique ability to connect, educate and build long-lasting relationships with members of the FIRST community will serve her as she embraces this new leadership position. Please join us in congratulating Moureen on her new role at FIRST!

This is an exciting and transformative time for FIRST, one of both reflection and rejuvenation. As mentioned in our recent Ichthyosis Focus newsletter, we are engaged in many initiatives including the development of the Life Cycle Modules and WebEx Product series, an all-inclusive approach to our Research Grant Program, the production of six more Patient Support Forums, and of course, the planning for the 2018 FIRST National Conference in Nashville. With that in mind, we are never too busy to provide support and friendship to the ichthyosis community! Please feel free to contact the office or to contact Moureen directly with any comments or questions (  We look forward to continuing our work of educating, inspiring and connecting the ichthyosis community for decades to come.


The FIRST staff and Board of Directors

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