Rare Disease Day 2015!

Date: 12/11/2014

Saturday, February 28 is World Rare Disease Day 2015!


How Will You Celebrate Rare?

World Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.

World Rare Disease Day will be held on Saturday, February 28, 2015. On this day, various activities take place in the United States, Europe, Russia, Japan and around the world to raise awareness for rare and genetic diseases, and to raise donations for the foundations that support and serve these communities. Many individuals plan special events on February 28th,  large and small, to support the cause and show they care.

How To Get Involved

In support of Rare Disease Day and NORD, the official US sponsor, FIRST encourages you to join patients, families, friends and caregivers, to promote awareness and education of ichthyosis and related skin types, on Saturday, February 28, 2015.

Here are some easy ways to bring people together, show you care, and have some fun too!



Also, when choosing a fundraising activity, remember that friends (volunteers) will perform better if they are enjoying what they are doing.  If they feel what they are doing is successful and making a difference, it will help stimulate their motivation. Most people will enjoy what they are doing if there is an element of fun and visible success. And no one knows your friends, family, and community better than you. So choose something everyone can enjoy!

Remember, promoting your events or sales through social media is a quick and effective way to spread the word and build excitement.  Don’t forget to let us know what you’re planning, so FIRST can spread the word too!

Social Media Badges

Use a Rare Disease Day profile badge or banner on your Facebook page!




Profile picture (JPG - 180x180 - 19 Ko)



Facebook cover photo (JPG - 851x315 - 68 Ko)




Use a Rare Disease Day badge for your Twitter account!
Twitter profile picture (JPG - 128x128 - 24 Ko)  


For more information on creating and promoting grassroots events to celebrate Rare Disease Day, or throughout the year,  please contact Chris Wassel at