News

Ichthyosis Awareness Month Activities

Date: 04/18/2012

Ichthyosis Awareness Month is here!  FIRST and many of our members have events planned to celebrate.

FIRST’s message on the PECO Building
Philadelphia, Pennsylvania
May 5, 6, and 7
FIRST will have our message Ichthyosis Awareness - www.firstskinfoundation.org in lights on the PECO Building on the Philadelphia skyline.

Night at the Philadelphia Phillies game
Philadelphia, Pennsylvania
May 7, 2012
7:05 pm
Citizens Bank Park
Ticket sales are now closed for this event.


Ace in the Hole Beach Run & Walk
Saturday, May 12, 2012
Long Island, New York at Lido West Beach
Race Day Registration:  9:00 am - 10:30 am
Opening Ceremonies:  10:30 am
Run & Walk Start Time:  11:00 am

Registration Fee:  Adult - $20    Student - $10

Ace in the Hole Foundation was established to honor the memory of 1st Lt. Michael LiCalzi, USMC.  Mike was only 24 years old when he died for our country while assigned to the 2nd Tank Battalion in Iraq.  He was born and raised in Garden City, New York, a graduate of Chaminade High School and the US Naval Academy, a surfer at Lido West Beach, and an all around great guy.

Michael was the brother of Greg LiCalzi, who is affected with lamellar ichthyosis.  FIRST is one of several recipients of the funds raised by this event.

Come support his memory and the causes he fought to protect by taking part in this great event!
Visit Ace in the Hole Foundation for more details.
Awareness and Fundraising Campaign
Saturday, May 12, 2012
Pamida Store
1995 South Cedar
Imlay City, Michigan
Member Nancy Osentoski.  will have a table at the store with information about ichthyosis and FIRST and will have a collection jar.  She will also have items available for sale.  If you are in the Imlay City area, come out and support Nancy.
Benefit Concert Featuring the Josh Ridings Band
Saturday, May 12, 2012 - 6:30 pm
Mountain View Church
5555 Parris Bridge Road
Boiling Springs, South Carolina

Contact:  864.578.1819
FIRST member, Kitty Morris Wall is planning this event.  Visit the event page on facebook for details.

Dinner at Chick-fil-A
Tuesday, May 15, 2012  5:00-8:00 pm
Chick-Fil-A Hillcrest
1995 E. Main Street
Spartansburg, South Carolina

FIRST member Kitty Morris Wall is organizing this event.  You can visit her page on facebook for details and contact information.

Wine Tasting in New Jersey
West Caldwell New Jersey
Saturday, May 19, 2012

The Cina family is hosting their
3rd Annual Wine Tasting Event  •  Open House – 3:00 to 5:00 pm
At their home in West Caldwell, New Jersey

$25 entry donation and all wine sales will benefit FIRST
Wine Sponsor – Wine Legend of Livingston, New Jersey
RSVP to sean_cina@toyota.com
G. Lily Fund Benefit Dinner & Silent Auction
Santa Rosa, California
Saturday, May 19, 2012

5:30 to 10:00 pm
La Rosa Taquileria & Grille
Santa Rosa, California

The Swan family of Santa Rosa is hosting this evening. The La Rosa restaurant will donate 25% of all proceeds from everyone who comes in supporting FIRST. There will be a silent auction from 5:30 to 8:00 pm and a cocktail hour from 5:30 – 7:30.
More Than Skin Deep Musical Revue
Somerset, New Jersey
ONE PERFORMANCE ONLY: Saturday, May 19, 2012 – 8:00pm

A Musical Revue to raise awareness and help support FIRST.

More than Skin Deep will feature songs from Broadway shows that deal with differences and overcoming adversities of all kinds. Cast of More than Skin Deep includes Mimi Francis, Danielle Fiorello, JC Gibriano, Denise Jobes, Patrick McGlone, Francine Mondi, Jared Picone, Tyler Picone, Sheilla Telo, and Tim Walton.

All tickets $20. No discounts accepted for this performance.

For more information or to order tickets, visit Villagers Theatre website, http://www.villagerstheatre.com/ or e-mail boxoffice@villagerstheatre.com
Night at the New York Mets game
Bronx, New York
Wednesday, May 30, 2012
7:10 pm
Citi Field
Order tickets



Fun-Raiser at Souplantation
Simi-Valley, California
Thursday, May 31, 2012
5:00 - 8:00 pm
Download a pdf with the details.