Follow our Blog, Saturday, Aug.3rd, for NJ Patient Support Forum Updates
|For those unable to attend, we will be posting news and meeting updates periodically on our blog, Saturday, August. 3, from Mahwah, New Jersey. Please visit FIRST's blog, blog.firstskinfoundation.org throughout the day.|
|Come out for a day of networking with other families affected by ichthyosis. This one-day meeting includes a medical discussion, research update, and product sharing. Meet other families in your area and learn how to build a stronger network in the ichthyosis community|
Saturday, August 3, 2013
$50 per person (13 years and older)
Register online by clicking this link
Continental Breakfast and Lunch included
Guest Room Rate: $99
A limited number of sleeping rooms have been reserved for $99 per night. To reserve a guest room, call 201-529-5880 on or before July 12, 2013 to guarantee the room rate of $99 in the FIRST room block. When calling the Doubletree, mention Foundation for Ichthyosis & Related Skin Types.
| The Doctors at the Meeting... |
Dr. Keith Choate, Yale University
Dr. Leslie Castelo-Soccio, Children’s Hospital of Philadelphia
Read What Our Members Have Said About Past Meetings!
"The meeting gave me the opportunity to meet other families!" ~ Amy S.
"I thought I was the only one who had skin like this - thank you FIRST for having this meeting!" ~ Joe. B.
Why Attend a Patient Support Forum?
This is an opportunity for individuals and families to hear about the current ichthyosis research and treatments from a leading physician, and to meet other families affected with ichthyosis. The team of medical professionals will discuss all aspects of ichthyosis with a question and answer opportunity. The meeting includes medical discussions, product sharing, networking, and much more.