News

FIRST to Know Conference Calls Planned

Date: 05/01/2013

Have you been on a FIRST to Know Call?

The past FIRST to Know conference calls have been well received by our members.  It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges.  There have been requests from our membership to add disease-specific calls to the calendar.  This is a great way to "meet" other families with the same ichthyosis type.  Dates and topics have been designated for the next series of FIRST to Know conference calls.  To join one of the conference calls listed below, simply RSVP to Moureen by mwenik@firstskinfoundation.org, or call the national office at 1.800.545.3286.  A call-in number will be sent to you via email.  All calls are held in Eastern time and are phone calls only, so you only need a phone, not a computer.

 

Thursday, June 6 - Vulgaris: Connecting with One Another

Tuesday, June 20 - Time for College: Transitioning from HS to College

Wednesday, July 10 - Infections: What Are They?