The National Registry for Ichthyosis and Related Skin Types is conducting a new study examining the effects of ichthyosis on mental health and quality of life. Your participation will help us better understand how ichthyosis impacts daily life across various ages and ichthyosis subtypes.
If you have already enrolled in the registry and would like to participate in this study, please email the Registry’s Patient Coordinator - Mary Sun, ichthyosisregistry@yale.edu or call the Yale lab at 203-737-4675. You will be asked to complete a short electronic survey assessing mental health and quality of life.   

If you have not already enrolled, please  email the Registry’s Patient Coordinator - Mary Sun,  ichthyosisregistry@yale.edu or call the Yale lab at 203-737-4675 to enroll in the registry and to participate in this project.

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