Date: January 01 - December 31, 2017

Have you been on a FIRST to Know Call?  It's a great way to connect...

Why Join A FIRST to Know Call?

Sharing tips, stories and challenges with others, makes living with ichthyosis just a little bit easier.   The FIRST to Know calls are a great way to “meet” other families and individuals.   Each call is centered on a topic or subject, and lasts for one hour.  You can decide which call is interesting to you and phone in. You can be an active participant, or call in and listen to what others are saying.  All calls are held at 8:00 PM Eastern Time. Do you have an idea for a FIRST to Know topic?  Contact Moureen Wenik, Senior Director, Programs & Research, via this link or by telephone at 1.800.545.3286.

The past FIRST to Know conference calls have been well received by our members.  It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges.  There have been requests from our membership to add disease-specific calls to the calendar.  This is a great way to "meet" other families with the same ichthyosis type.  Dates and topics have been designated for the next series of FIRST to Know conference calls.  All calls are held in Eastern time and are phone calls only, so you only need a phone, not a computer.

To participate in a call, simply follow this link and check off the call dates in which you would like to participate. You will then receive an email with the call-in information.

Upcoming Calls

FIRST to Know

September 24 – National Conference: What Are the Benefits of Attending?

October 29 – Darier Disease: Sharing Information

November 12 – ARCI-CIE: Sharing Information

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