Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
The Foundation for Ichthyosis & Related Skin Types, Inc.® (FIRST) hosts a 3-day national family conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.
Family Conferences are a fantastic opportunity for affected individuals and their families to meet and network with other affected individuals. They connect those searching for information and support in living wih ichthyosis and related skin types.
2014 Conference is scheduled
Friday, June 20 - Sunday, June 22, 2014
Details will be posted when they are finalized.
Past conferences have been held:Members of FIRST come from all over the world to attend this three-day event. FIRST provides lectures by leading physicians about ichthyosis, open discussion groups and child care activities. It is a chance for people affected by ichthyosis to meet others who share similar life experiences and related issues. The friendships that are formed at the conferences last a lifetime!