As a new parent of a child with ichthyosis, you may feel confused, or even alone. Not to worry,  FIRST has information that will answer your many questions and help you through the challenges ahead, as you guide your child to their special place in the world.

Be sure and review our handy caregiver's guide for everything from how to avoid overheating, tips for bathing, caring for infections and scale scalp, to explaining ichthyosis to friends and family.  Our affected families have participated in preparing all of our guides, so you will learn directly from those "who have been there." Soon you'll be getting all the support you need from our big family here at FIRST.

Share This Page:

Search