
Celebrating Our Anniversary
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
The Foundation for Ichthyosis and Related Skin Types, Inc.® (FIRST) is governed by a volunteer Board of Directors dedicated to supporting our mission with their time and talents. FIRST's Board members are active participants in the various activities of the Foundation and are representative of our diverse population locally and nationally.
The 14-member Board of Directors has included individuals affected by various forms of ichthyosis, parents of affected children, dermatologists and researchers in the field of ichthyosis, as well as attorneys, educators, psychologists and corporate individuals. FIRST has been fortunate to have nationally known dermatologists, including a past president of the American Academy of Dermatology, sit on its board. The Board of Directors meet quarterly via teleconference, at the biennial National Family Conference, and also at a biennial retreat in Philadelphia during non-conference years. The Board is responsible for monitoring the results of FIRST's operations and supports the achievement of FIRST's ambitious strategic goals through standing, special (or ad hoc) and advisory committees.
Individuals who would like to express an interest in serving on FIRST's Board of Directors should contact the Board Development Committee for more information.
2013 FIRST Board of Directors
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Mike Briggs |
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Moise Levy, MD |
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Larry Silverman
CFO
Coppell, Texas
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Jennifer Hillman
New Hyde Park, New York |
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Denise Benedetto
Wantagh, New York |
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Jonathan Dyer, MD
Columbia, Missouri |
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Jeff Hoerle
Stone Ridge, New York |
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Gabriele Richard, MD
Silver Spring, Maryland |
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William B. Rizzo, MD
Omaha, Nebraska |
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John J. Schoendorf
Miami, Florida |
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David Scholl, PhD |
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Eric Schweighoffer |
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Rachel See Richmond, Virginia |
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Terry Tormey New Hope, Pennsylvania |
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General Counsel Daniel J. Siegel, Esq. Havertown, Pennsylvania |
| Board Members Emeriti |
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Philip
Fleckman, MD Seattle, Washington |
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Leonard M. Milstone, MD
New Haven, Connecticut |
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Amy Paller, MD
Chicago, llinois |
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Mary L. Williams, MD
San Francisco, California |

