Board of Directors

The Foundation for Ichthyosis and Related Skin Types, Inc.® (FIRST) is governed by a volunteer Board of Directors dedicated to supporting our mission with their time and talents. FIRST's Board members are active participants in the various activities of the Foundation and are representative of our diverse population locally and nationally.

The 14-member Board of Directors has included individuals affected by various forms of ichthyosis, parents of affected children, dermatologists and researchers in the field of ichthyosis, as well as attorneys, educators, psychologists and corporate individuals. FIRST has been fortunate to have nationally known dermatologists, including a past president of the American Academy of Dermatology, sit on its board. The Board of Directors meet quarterly via teleconference, at the biennial National Family Conference, and also at a biennial retreat in Philadelphia during non-conference years.  The Board is responsible for monitoring the results of FIRST's operations and supports the achievement of FIRST's ambitious strategic goals through standing, special (or ad hoc) and advisory committees.

Individuals who would like to express an interest in serving on FIRST's Board of Directors should contact the Board Development Committee  for more information.

2016 FIRST Board of Directors

Jeff Hoerle
Stone Ridge, New York

Moise Levy, MD
 Vice President

Austin, Texas

Larry Silverman     
Frisco, Texas
Denise Benedetto
Wantagh, New York

Keith Choate, MD, PhD
Wallingford, Connecticut


Kimberly Cole
Wauwatosa, Wisconsin
Denise Eiser
Ferndale, Michigan
Mark Evans
Hampstead, Maryland
Tracie Pretak
Wilcox, Pennsylvania
Gabriele Richard, MD
Silver Spring, Maryland


William B. Rizzo, MD
Omaha, Nebraska

Eric Schweighoffer
Southington, Connecticut


Rachel See
Richmond, Virginia

Robert Silverman
McLean, Virginia



General Counsel
Daniel J. Siegel, Esq.

Havertown, Pennsylvania

Board Members Emeriti
Philip Fleckman, MD
Seattle, Washington
Leonard M. Milstone, MD
New Haven, Connecticut
Amy Paller, MD
Chicago, llinois

David Scholl, PhD
Mason, Ohio

Mary L. Williams, MD
San Francisco, California


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