Celebrating Our Anniversary
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Caregivers' Guide: Introduction
It may be perhaps the most anguishing experience you will ever know. Your baby has a skin disorder called ichthyosis. The excitement you anticipate at the birth of your child has been tempered by fear and pain; the joy has been diluted by tears. It’s okay to cry, but remember this….life gets better.
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