Portia C. Makes a Difference!
Portia C. may be only 16 months old, but Pancakes with Santa, the event the Roseland Municipal Youth Guidance 
Council sponsored to honor Portia, proves she isn't too young to bring awareness about ichthyosis. The event raised over $800.00 with the proceeds donated to FIRST. Young children and families attended the breakfast for pancakes, and most importantly a visit with Santa. Portia was surrounded by family, friends, and community members who came out on a cold Sunday morning to share in this event. FIRST members Harry and Lynne A. also attended this holiday event. Lynne met Jolie, Portia's mother, at the 2008 Family Conference in Chicago and has been great support for the family ever since. With the national office only a few hours away, Moureen Wenik, F.I.R.S.T. Program Director, accepted Jolie's invitation to meet the many friends and family members at the event. Another guest of the breakfast proves how talking to others can increase awareness. During a business trip in November, mom, Jolie, met New Jersey State Senator Richard Cody, the senator in her district. Through conversation she learned about his compassion for those with skin disorders. She decided to follow-up on her chance meeting and invited the
Senator to the breakfast, to her surprise, he accepted the invitation, and joined the festivities. Congratulations to the this family for a successful event!
Recently, Jean Pickford, Foundation Executive Director, accepted a check from the Borough of Roseland in support of this wonderful breakfast. The Roseland Borough Council presented Jean with the check at their recent meeting.
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