Research and Support

Here you will find information about FIRST's research programs, publications, and other programs and support.

Publications/Educational Library
Access FIRST's publications, including articles from our quarterly newsletter, Ichthyosis Focus, FIRST's many resource sheets regarding skin care and other issues, and electronic copies of FIRST's publications such as: Ichthyosis: An Overview, our Caregivers Guide, and Teacher's Guide.
Research
Access information about FIRST's Research Grant Program (including grant application information) along with links to recent ichthyosis research and published articles and information about accessing the National Ichthyosis Registry.

Programs and Support

National Family Conference
FIRST's signature event, the bi-ennial National Family Conference provides attending families an opportunity to forge unforgettable connections with each other and to consult with leading medical experts. FIRST also conducts regional meetings.

Click Here to Learn More about the national family conference

Physician Referral Service
A service which provides referrals to dermatologists treating patients with ichthyosis. If you would like to be connected to a physician near you, please contact the national office.

Click Here to contact the national office

Regional Support Network
The Regional Support Network (RSN) is a community of people who come together and support each other through the sharing of knowledge, experience, and advice.

Click Here to Learn More about the regional support network

Tele-Ichthyosis Online Website
A resource to assist local dermatologists with treatment and diagnosis of patients with Ichthyosis and related skin types.

Click Here to Learn More about tele-ichthyosis

Meet Our Members
Read inspirational stories about FIRST members who have been affected by ichthyosis.

Click Here to meet some of our members

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