Founded in 1981To improve lives and seek cures for those affected by ichthyosis and related skin types.
Kelly and Mark Klafter will be honored at the 2015 Testimonial Dinner for their unprecedented support of FIRST. Both have been true advocates for the ichthyosis community, since their son Adam was born with epidermolytic ichthyosis in 2002. In the past 13 years, the Klafters have attended and participated in several FIRST National Conferences and regional Patient Support Forums and hosted several fundraisers for FIRST, raising over $150,000 to support FIRST’s valuable programs and services.
Kelly and Mark now work to unite families affected by this rare genetic skin condition. Kelly serves as a volunteer in FIRST’s Regional Support Network, where she connects with families who have a child recently diagnosed with ichthyosis. Mark often answers questions posted by families on the FIRST Facebook group page and serves as a guest “Dad” blogger on the FIRST Blog. Both Kelly and Mark guide new families through challenging times with a sense of understanding, compassion and a much needed laugh. Parents of newly diagnosed children hear about Adam’s successes and the environment of love and support Kelly and Mark created for both Adam and Matthew.
Their participation in FIRST has helped shape the organization to where it is today, the leading global patient advocacy group for individuals with ichthyosis. Mark served on the FIRST Board of Directors for several years, including a term as the organization’s Chief Financial Officer. We hope you will join us in celebrating Mark and Kelly Klafter and thanking them for their years of support and involvement in FIRST.