Founded in 1981To improve lives and seek cures for those affected by ichthyosis and related skin types.
Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community.
Patient Support Forums
one-day meetings to connect with members in your region.
Time to Meet Other FIRST Members
These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines. The meetings will include a light breakfast, lunch, and childcare for families with children. Registration information and cost will be posted on FIRST's facebook page.
Meetings for 2017 are planned for:
March 25, 2017 - Raleigh, North Carolina
April 1, 2017 - San Antonio, Texas
May 6, 2017 - Philadelphia, Pennsylvania
May 20, 2017 - Omaha, Nebraska
June 10, 2017 - Portland, Oregon
June 24, 2017 - Milwaukee, WIsconsin
August 19, 2017 - Boston Massachussetts
September 16, 2017 - Denver, Colorado
September 23, 2017 - Las Vegas, Nevada
TBD - Louisville, Kentucky
TBD - Jackson, Mississippi
TBD - Billings, Montana