Ichthyosis Awareness Month | Foundation for Ichthyosis (FIRST)

For many years, FIRST has celebrated Ichthyosis Awareness Week (IAW) during the first week of October. Unfortunately, there is major competition for media attention during October and we often go unnoticed. It has also been suggested that we expand our timeframe from one week to a full month so families have more time to spread awareness or host a grassroots event. So, we are now celebrating Ichthyosis Awareness Month in May. In fact, years ago ichthyosis awareness was originally celebrated in May, so we are keeping with our early tradition.

Educating your local community is very important as it can make day-to-day life much easier for those affected. One of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story.

If you would like to hand out an informational flyer about ichthyosis and FIRST, you may [download a pdf].

Fundraising Ideas	Awareness Ideas
Auction Bingo Night Book Sale Bake Sale Candy Sale Car Wash Collection Jars Dance Donations in lieu of birthday gifts Garage Sale Dress Down Day at work or school Golf Tournament Raffle Skate-a-thon	Collection Can – with brochures Distribute brochures in your community Submit your personal story to a local newspaper, radio or TV station Submit your personal story to your company newsletter

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