Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
The Coalition of Skin Diseases (CSD) is a voluntary coalition of patient advocacy groups addressing the needs and concerns of millions of people whose lives are affected by skin diseases. The CSD works closely with the National Institute of Arthritis and Musculoskeletal and Skin Diseases. (NIAMS) to coordinate research efforts for all skin diseases. Members of the Coalition meet annually with members of Congress and testify when selected before the appropriations committees to educate Congress and the public on the seriousness of skin diseases while stressing the need for increased medical funding. For more information visit their website at www.coalitionofskindiseases.org.