Tele-Ichthyosis

An online resource available to dermatologists.

FIRST's teledermatology website has been created to assist local dermatologists with the treatment and diagnosis of patients with ichthyosis and related skin types.

Thanks to members of our Medical & Scientific Advisory Board and the Lennox Foundation, this site is available for your dermatologist to upload questions, documents, and images for input and consultation from ichthyosis and related skin type experts. The site uses a store-and-forward teledermatology approach in a secure, HIPAA compliant environment to facilitate communication between dermatologists dealing with this rare set of diseases.

So now, when your dermatologist needs assistance in a diagnosis, treatment option, or any other unanswered question or concern, he/she can simply  click on this tele-ichthyosis link. The case will be reviewed by our expert panel and a reply will be sent back in a timely and efficient manner.

This website takes us one step closer to closing the gap for those affected in the ichthyosis community. No matter where you live, you and your doctor can now have access to reliable, expert and cutting-edge information about your disorder. Be sure to share this good news with your dermatologist and encourage them to come to our website and begin registration by clicking the link below so they can better serve you as their patient.

We are grateful to the Lennox Foundation for funding this project in memory of Dane Christian Phelps.

 


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