Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
FIRST offers a variety of resources to help those affected manage their ichthyosis.
A wide variety of printed materials are available to help you learn more about ichthyosis and its management.; Overview Booklet, Genetics Booklet, Caregiver's Guide, Teacher's Guide, Disease-Type Fact Sheets, ichthyosis care Resource Sheets.
New parents have information available for the care of your newborn affected with ichthyosis.
FIRST's Regional Support Network is in place to help connect members and families with others in similar circumstances.
Conferences, Forums and Meetings are planned regularly to allow for face-to-face and telephone connections.
FIRST Facebook Group Pages
FIRST for Parents - https://www.facebook.com/groups/FIRSTforParents/
FIRST for Teens - https://www.facebook.com/groups/FIRSTforTeens/
FIRST YAWI - https://www.facebook.com/groups/FIRSTYAWI/
FIRST for Adults - https://www.facebook.com/groups/FIRSTAdults/