Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Thanks to the generosity of the Shahnaz Kraybill family and their family and friends, (Aliya, affected with ichthyosis, her sister, Diya, and their parents Durreen and Robert), FIRST has established the Diya & Aliya’s Friends (DAF) Fund to help alleviate some of the financial burden that may be facing families with affected children.
FIRST realizes that the fight against ichthyosis is not only medical, but also financial. As families of affected individuals maintain their daily routine of treatments, it can be complicated by the ongoing costs of medical supplies and other comforting aids and procedures.
Thanks to the generosity of an anonymous donor, FIRST has established the Jane & Henry Bukaty Skin Care Fund to help alleviate some of the financial burden that may be facing our members. Here’s your opportunity to apply for some financial assistance for ichthyosis treatment.