Patient Support Forums

Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community.

Patient Support Forums
one-day meetings to connect with members in your region.

Time to Meet Other FIRST Members
These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast, lunch, and childcare for families with children.  Registration information and cost will be posted on FIRST's facebook page.

Meetings for 2017 are planned for:

March 25, 2017 - Raleigh, North Carolina

April 1, 2017 - San Antonio, Texas

May 6, 2017 - Philadelphia, Pennsylvania

May 20, 2017 - Omaha, Nebraska

June 10, 2017 - Portland, Oregon

June 24, 2017 - Milwaukee, WIsconsin

August 19, 2017 - Boston Massachussetts

September 16, 2017 - Denver, Colorado

September 23, 2017 - Las Vegas, Nevada

TBD - Louisville, Kentucky

TBD - Jackson, Mississippi

TBD - Billings, Montana


A FIRST member offers six great reasons to attend!

If you would like additional information about any of our Patient Support Forum meetings, please contact Moureen Wenik, Senior Director, Programs & Research at

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