Patient Support Forums

Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community.

Patient Support Forums
one-day meetings to connect with members in your region.

Time to Meet Other FIRST Members
These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast, lunch, and childcare for families with children.  Registration information and cost will be posted on FIRST's facebook page.

Meetings for 2015 were held:

Toronto, CANADA - Saturday, April 18, 2015
Courtyard by Marriott - Downtown Toronto


Minneapolis, Minnesota – Saturday, April 25
Crowne Plaza Hotel & Suites MSP Airport – Mall of America

Phoenix, Arizona – Saturday, June 6
Sheraton Phoenix Airport Hotel

Miami, Florida – Saturday, August 15
Sheraton Miami Airport Hotel


A FIRST member offers six great reasons to attend!

If you would like additional information about any of our Patient Support Forum meetings, please contact Moureen Wenik, Senior Director, Programs & Research at

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