October 3, 2009 ~ Suncoast Casino & Hotel
Las Vegas proved to be a great setting for the Region 8 meeting. The October 3rd event had 21 families in attendance. Dr. Mary Williams, who is semi-retired from the University of California San Francisco, opened up the meeting with a discussion called What is Ichthyosis which was followed up with a question and answer session. The families were asking great questions, such as "Why does skin heal so fast?" to "How is the best way to handle wound care?" The afternoon brought a new twist to guest speaking. With the use of Skype, Dr. Sherri Bale, from GeneDx in Maryland, audio presented a power point discussion on the Genetics of Ichthyosis which was also followed with a question and answer session. The children enjoyed spending the day in the childcare room, staffed by a professional childcare company, where they made crafts and played games. There was an opportunity for three breakout groups, parents and caregivers, adults, and teens. The meeting brought families together who had never met before as well as a family that had communicated on the phone through the Support Network and finally had the chance to meet face to face for the very first time!
If you would like information about future meetings, contact Moureen Wenik, Program Director at 800.545.3286.
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