Richmond, Virginia
April 30, 2011 ~ Holiday Inn I-64

The 2011 Regional Meetings kicked off in Richmond on April 30th, and the next three are expected to measure up to the success of it! It was great to see so many of our members travel from many parts of Virginia, Maryland, North Carolina and even as far south as South Carolina, for this one day event. The meeting was a great day of learning, laughing, and lunching. A special thank you to Dr. Gabriele Richard, from GeneDx and Dr. Jorge Toro, from National Institutes of Health; they did a great job educating the attendees in treatment options, as well as n interactive genetic overview. These one day events bring a wonderful informal atmosphere, which allows for open question and answer sessions, and time to meet the medical professionals and chat during lunch. I am always intrigued by the common message I hear at the meeting from new attendees – “I thought I was the only one with this disease”, and “I am humbled by the support and love I see from everyone in the room.” These meetings give me the opportunity to meet more of our members, and to know what important work needs to continue to be done for everyone! Thank you to everyone who attended or plan to attend the upcoming regional meetings this year.

 All of the meeting participants    Carol and Margaret F. from Palmyra, Virginia
 Dr. Gabriele Richard demonstrates genetics  Dr. Jorge Toro presents to the group  The children were entertained with many activities
Share This Page: