Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community.
Patient Support Forums
1-day meetings to connect with members in your region.
Time to Meet Other FIRST Members
These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines. The meetings will include a light breakfast, lunch, and childcare for families with children. Registration information and cost will be posted on FIRST's facebook page.
Meetings for 2015 are planned for:
Miami, Florida – Saturday, April 11
Minneapolis, Minnesota – Saturday, April 25
Phoenix, Arizona – Saturday, June 6
Toronto, CANADA - TBD
Details for these events will be available soon.
5 meetings were held in 2013
June 8, 2013
Moise Levy, MD
Nnenna Agim MD
Meena Julapalli MD
Mahwah, New Jersey
August 3, 2013
Keith Choate, MD PhD
Due to low enrollment for this Patient Support Forum meeting, it was cancelled.
San Jose, California
September 7, 2013
Keith Choate, MD, PhD & Phil Fleckman, MD
Kansas City, Missouri
September 21, 2013
Brandon Newell, MD & Amy Nopper, MD