Patient Support Forums

Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community.

Patient Support Forums
1-day meetings to connect with members in your region.

Time to Meet Other FIRST Members
These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast, lunch, and childcare for families with children.  Registration information and cost will be posted on FIRST's facebook page.

Meetings for 2015 are planned for:

Miami, Florida – Saturday, April 11

Minneapolis, Minnesota – Saturday, April 25

Phoenix, Arizona – Saturday, June 6

Toronto, CANADA - TBD

Details for these events will be available soon.

5 meetings were held in 2013

Dallas, Texas

June 8, 2013
Moise Levy, MD
Nnenna Agim MD
Meena Julapalli MD

Mahwah, New Jersey

August 3, 2013

Keith Choate, MD PhD

Cincinnati, Ohio

August 10, 2013
Kara Shah, MD

Due to low enrollment for this Patient Support Forum meeting, it was cancelled.

San Jose, California

September 7, 2013

Keith Choate, MD, PhD & Phil Fleckman, MD
Kansas City, Missouri

September 21, 2013
Brandon Newell, MD & Amy Nopper, MD

A FIRST member offers six great reasons to attend!

If you would like additional information about any of our Patient Support Forum meetings, please contact Moureen Wenik, Program Director at

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