Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community.
2013 Patient Support Forums
One-day meetings to connect with members in your region.
Time to Meet Other FIRST Members
Mark your calendar for the 2013 Patient Support Forum. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines. The meetings will include a light breakfast, lunch, and childcare for families with children. Registration information and cost will be posted on FIRST's facebook page.
We hope to see you at one of the following events:.
5 meetings were held in 2013
June 8, 2013
Moise Levy, MD
Nnenna Agim MD
Meena Julapalli MD
Mahwah, New Jersey
August 3, 2013
Keith Choate, MD PhD
Due to low enrollment for this Patient Support Forum meeting, FIRST has cancelled this event.
San Jose, California
September 7, 2013
Keith Choate, MD, PhD & Phil Fleckman, MD
Kansas City, Missouri
September 21, 2013
Brandon Newell, MD & Amy Nopper, MD