Come out for a day of networking with other families affected by ichthyosis.  Meet other families in your area and learn how to build a stronger network in the ichthyosis community. These one-day meetings are filled with medical discussion, research updates, networking, product sharing, and skin care routines.  The meetings will include a light breakfast, lunch, and childcare for families with children.

Meetings for 2019:

  • Charleston, South Carolina
  • Orlando, Florida: September 14, 2019
  • Pittsburgh, Pennsylvania: May 4, 2019
  • Burlington, Vermont: August 10, 2019
  • Austin, Texas
  • Boise, Idaho: June 29, 2019
  • Salt Lake City, Utah: July 13, 2019
  • Huntington Beach, California
  • Toronto, Canada: July 20, 2019

If you would like additional information about any of our Patient Support Forum meetings, please contact Moureen Wenik, Executive Director, at

Share This Page: