|Angela Godby, Assistant Vice Chancellor for Federal Relations for the University of Texas System.|
After years of political posturing and intense debate, new healthcare reform legislation was signed into law earlier this spring. So, what does that mean for FIRST patients and families?
This fall, a number of provisions of importance to FIRST members went into effect:
This means that a FIRST family whose son Jimmy was born with EHK, and who has been unable to find an individual policy because of the baby's pre-existing condition, will now be able to get their son covered. This "pre-existing condition" has meant the family has had to pay out of pocket anytime Jimmy needed to go to the doctor.
- Children will be able to stay on their families' policies until they reach age 26.
- Annual and lifetime limits on health insurance coverage will no longer be allowed.
In addition to these key provisions, an easier appeals process will be required for denial of medical coverage.
|Additional Resources to Learn How Health Reform Affects You|
|The Genetic Alliance has published information in its weekly bulletin to help you stay informed and updated on the milestones of the Patient Protection and Affordable Care Act. The Kaiser Family Foundation launched a new online tool, the Health Reform Source, to help the public better understand the various provisions contained in the Affordable Care Act. The new website provides explanations of the provisions included in the new law, an analysis of issues surrounding implementation of the law, public opinion polling, and information from the states as provisions in the new law begin to take effect.
News on the Hill keeps members current with the legislation in Washington, DC. This column is written by Angela Godby, affected with lamellar/CIE.
« Back to Previous Page