Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Many programs exist to help individuals find their medications at reduced cost or free-of-charge. Some offer their services at no cost; others ask for a small processing fee or a monthly membership fee, and others charge a small fee per medication. Most connect the consumer to patient assistance programs offered by the drug manufacturers. Many drug manufacturers who operate in the U.S. offer patient assistance programs for some of their prescription products; these are called pharmaceutical manufacturers patient assistance programs. You and your doctor can access the pharmaceutical manufacturers’ patient assistance programs on your own. However, some people find the paperwork required to apply to these programs overwhelming. The program listed below help you identify which programs you may be eligible for and help you navigate through the paperwork.
Free Medicine Foundation
P.O. Box 125
Doniphan, MO 63935
Prepares materials for you and your doctor to send to the appropriate drug manufacturer.
$5.00 processing fee. Fee is refunded if you are turned down for assistance. ** Lac-Hydrin, Accutane, Soriatane
Medical Discounts International
We Care Medical Mall
3431 Pomona Boulevard, Unit B
Pomona, CA 91768
Offers low cost mail order medicines
** No skin care products
Lawson Health Care Foundation
(under the umbrella of Medical Discounts Int’l)
Connects patients to pharmaceutical manufacturers’ patient assistance programs.
$5.00 per medicine processing fee. Fee is refunded if you are turned down for assistance
Partnership for Prescription Assistance
“Offers a single point of access to more than 475 public and private patient assistance programs including more than 150 programs offered by pharmaceutical companies.” A trained specialist will help identify specific programs for which you may qualify. No fee. ** Lac-Hydrin, Lacticare HC
The Web’s most current & comprehensive directory of Patient Assistance Programs
A Program of Volunteers in Health Care
111 Brewster Street
Pawtucket, RI 02860
Provides information needed to access pharmaceutical companies patients assistance programs. No fee.
** Lac-Hydrin, Tazorac
Express Scripts Specialty Distribution Services, Inc.
P.O. Box 66536
St. Louis, MO 63166-6536
Charges a small fee for each supply of medicine. Available to individuals and families with incomes up to 250% of federal poverty level or approximately $48,000 for a family of 4.
**Limited medications list; no skin care products.
** Products that may be of interest to individuals with ichthyosis.
Neither the Foundation, its Board of Directors, nor its Medical & Scientific Advisory Board endorse any of the above sites.
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This information is provided as a service to patients and parents of patients who have ichthyosis. It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents. Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here. All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.