May is Ichthyosis Awareness Month
Foundation Raises Awareness for Rare Skin Disorder
Colmar, PA (April 15, 2013) - The Foundation for Ichthyosis & Related Skin Types, Inc.® (FIRST), is celebrating Ichthyosis Awareness Month during May. Events planned include Ichthyosis Day with the Kansas City Royals and FIRST Night at the New York Mets.
“There is no cure for Ichthyosis, only treatments,” said Jean Pickford, Executive Director of FIRST. “It is our hope that by raising awareness we can continue to conduct extensive research and provide critical support and services to our members.” According to FIRST, each year, more than 16,000 babies are born with some form of ichthyosis, of those, approximately 300 are born with a moderate to severe form. This disease affects people of all ages, races, and gender. The disease usually presents at birth, or within the first year, and continues to affect the patient throughout their lifetime.
Members will be conducting grassroots fundraisers, nation-wide, including: High Heels & Handbags in Georgia (girl’s night out and online auction), a dance-a-thon in Ontario, a marathon in California, a beach run in New York, and a wine tasting in New Jersey.
About the Foundation for Ichthyosis & Related Skin Types, Inc.®
The Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) is the only nonprofit foundation in the United States dedicated to families affected by the rare skin disorder ichthyosis. Approximately 300 babies each year are born with a moderate to severe form of ichthyosis. FIRST educates, inspires, and connects those touched by ichthyosis and related disorders through emotional support, information, advocacy and has supported more than $1.4 million in research funding for better treatments and eventual cures. For more information, call toll-free at 1.800.545.3286 or visit www.firstskinfoundation.org.
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