Celebrating Our AnniversaryEducate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
May is now Ichthyosis Awareness Month (IAM). During this month, we encourage our families and friends to raise awareness about ichthyosis and to host grassroots events to raise money for research and to help affected individuals. IAM replaces Ichthyosis Awareness Week (IAW), which had been held in October, but often was lost among the many events and holidays in the fall; in addition, during FIRST's early years IAW was held in May. We have returned to our tradition and to expand the celebration for an entire month. Therefore, we now celebrate Ichthyosis Awareness Month in May.
Educating your local community is very important as it can make day-to-day life much easier for those affected. One of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story.
Together, we can make a difference...
Don't forget to tweet about your Ichthyosis Awareness Month activities using the hashtag #IAMpics13
* This information is provided as a medium for the free exchange of information. Neither the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) its Board of Directors, its Medical Advisory Board, officers, or staff endorse any treatments or products mentioned in any of the above-mentioned blogs. Views and opinions expressed on the blogs do not necessarily reflect the views of the Foundation or Foundation officials.
If you would like to hand out an informational flyer about ichthyosis and FIRST, you may download it here!