Diane S. of Northfield, Minnesota has a 2-year-old granddaughter, Genevieve, affected with EHK. Diane and her daughter, Jenny, are co-owners of Sisters Ugly, a fashion boutique. They held an event, Fashion Fix, at their boutique. They put on a fashion show with clothing from two boutiques in Northfield, their Sisters Ugly boutique and The Rare Pair. There was also a local salon (Buzz Salon) that volunteered their time to do hair and makeup for the 14 models. There were over 65 women who attended the show, which included food and shopping. A portion of the proceeds from ticket sales and shopping sales was donated to FIRST. FIRST was chosen because "It's a struggle to find good information about the condition and it needs to be researched and brought to people's attention."
|Participants browse the displays at Sisters Ugly boutique.|
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