Frank and his daughter, Charlotte, cheer on the White Sox.
On Wednesday evening, August 8, the Chicago White Sox hosted the Kansas City Royals in an American League Central division match-up.
The Kouba family brought family members to enjoy the evening.
 FIRST member, Frank Osowski, led 196 friends, family members, and members of FIRST to the game. Frank, whose son Ben is affected with epidermolytic ichthyosis (formerly known as epidermolytic hyperkeratosis), is no stranger to raising money and awareness on behalf of FIRST. Frank hosted the very successful evening at Harry Caray’s restaurant on the eve of the 2008 Chicago Family Conference and in the fall of 2010, Frank auctioned a Notre Dame football package with the proceeds going to FIRST.
FIRST Night at the White Sox was the 3rd evening at a Major League ballpark this year. In May, similar events took place in Philadelphia and New York.
Frank enlisted help from Chicago-area members to create this successful evening of awareness, fundraising, and fun! Matt and Kathy Kouba are the parents of 14-year-old Alicia and 11-year-old Ben, both of whom are affected with CIE. The Kouba’s brought a group of friends and family to cheer on the Sox. Laura Hogan, an active member of FIRST who is affected with lamellar ichthyosis, brought friends to the game. Dr. Amy Paller of Northwestern University, FIRST Board member emeritus, and Medical & Scientific Advisory Board member, brought a group of friends and colleagues including her husband Etahn Cohen and her son Ben to enjoy the evening.
Amy Paller brought her son, husband, and a group
of friends and colleagues to the game
Osowski family members made signs to hold up and attract the attention of the cameras, and FIRST’s brochures were available for those curious about our group. 
Friends and business associates of Frank’s who couldn’t attend the game were also generous with donations for the evening.
The grand total raised for the event was more than $5,000!  Many, many thanks to Frank Osowski for all of his hard work on this event and to the FIRST members who encouraged friends and family members to join.
Ben Osowki takes in the game. The Osowski family made signs to let everyone know that FIRST was at the game.
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