A big thanks to the Phillip and Kristen C., whose son Nicholas is affected with lamellar ichthyosis, for taking a break from all of the holiday festivities to organize a FIRST Night at the New York Islanders game on December 28th! Pictured is nine-year-old Vanessa B., with Marc B.. Vanessa is affected with lamellar/CIE and this was her first time meeting someone else with ichthyosis! Her family was very thankful to Marc's family for offering to meet with them. Proceeds from the game were over $350. A fun time was had by all!
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