Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Just as the skin sloughs off on areas that you can see, it also sheds inside the ear. For people with ichthyosis, who shed more than the normal amount of skin, the skin shed inside the ear canal can combine with wax and form a solid material. This solid material may itch or smell and may cause a reduction in hearing. Never attempt to remove this solid material yourself. Have your, or your child’s, hearing checked regularly, and discuss ways to keep the ear free from build-up from the shedding skin. Your physician may recommend an earwax remover that is sold over the counter. Never stick anything in your or your child’s ears; this can puncture the eardrum and cause hearing loss.
Some of our members have found products and strategies that work for them. Please check with your doctor before using any of these products:
Neither the Foundation, its Board of Directors, nor its Medical & Scientific Advisory Board endorse any of the above products. Please consult with your physician before using any new product.
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This information is provided as a service to patients and parents of patients who have ichthyosis. It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents. Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors, nor Foundation staff and officials endorse any treatments or products reported here. All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.