FIRST and the Shahnaz Kraybill family realize that the fight against ichthyosis is not only medical but also financial. As families of affected children maintain their daily routine of treatments, it can become complicated by the ongoing costs of medical supplies and other comforting aids and procedures.
Thanks to the generosity of the Shahnaz Kraybill family and their family and friends, (Aliya, affected with ichthyosis, her sister, Diya, and their parents Durreen and Robert), FIRST has established the Diya & Aliya’s Friends (DAF) Fund to help alleviate some of the financial burden that may be facing families with affected children. This special fund is available for children around the world affected with ichthyosis and is intended to provide financial assistance to purchase lotions, medicine, and treatment necessities.
To apply for an award, please complete the DAF application form and submit a photograph and a doctor's note.
All forms must be completed in English and submitted to the FIRST office. Individual awards will not exceed $250.00. Applications will be awarded two times per year; all applications must be received by April 30 or October 31 each year to be considered for each cycle. Applicants will be eligible to receive one award every two years. Applicants receiving funds from the Jane & Henry Bukaty Skin Care Fund, will not be eligible to also receive funds from the Diya & Aliya Friends Fund.
This fund is available to affected children from around the world. Two-thirds of the fund disbursements have been designated for non-US families; the other one-third is designated, but not limited, to US families. You will be contacted by the FIRST office if you have been awarded funding.
Foundation for Ichthyosis & Related Skin Types, Inc. ® (FIRST)
Diya & Aliya’s Friends (DAF) Fund
2616 N. Broad Street
Colmar, PA 18915
|Donations to Diya & Aliya’s Friends (DAF) Fund are always appreciated and enable FIRST to make this fund available to more of our members. Click on this link to make a donation.|
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