Texas Members Raise Money for Lamellar Ichthyosis Research
Annual Crawfish in the Park April 7, 2007
Two parents of a young daughter affected with lamellar ichthyosis have founded Project Save our Skin (SOS) in Fort Worth, Texas to help raise awareness and money for ichthyosis research. In their efforts to learn more about ichthyosis after their daughter was born, they quickly realized how little information was available in their local area. Only when they discovered the Foundation, did they learn that information, resources, and support were readily available to them about this rare genetic disease. Being concerned and loving parents, they were eager for as much information as possible and their quest began to make a difference in their daughter's life. Armed with this passion, Cort DeHart and his wife, Elizabeth Berry, formed Project SOS, a non-profit organization, and partnered with the Foundation to fund lamellar ichthyosis research. They launched the FIRST/PROJECT SOS Lamellar Ichthyosis Research Grant program to encourage and support the investigation into the causes, treatments and potential cures for lamellar ichthyosis. Every year, the law firm of DeHart Crockett, P.C. hosts its own charity event called Crawfish in the Park for the benefit of Project SOS. On April 7, 2007 the firm hosted the huge crawfish boil with live music, children's activities, and all you can eat crawfish.
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