Conferences, Forums & Meetings

Highlights from the 2014 National Family Conference in Indianapolis!

 San Diego here we come! June 24 - 26, 2016

San Diego Marriot Mission Valley

8757 Rio San Diego Drive
San Diego, CA  92108

Room Reservation Information

Room rate is $129 per night ++.
Here is the link to make reservations:

Group Reservations Toll Free: 877-622-3056
Group Reservations Local Phone: 619-692-3800

National Family Conferences

FIRST hosts a 3-day national family conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.

Family Conferences are a fantastic opportunity for affected individuals and their families to meet and network with other affected individuals and consult with leading medical experts.  They connect those searching for information and support in living wih ichthyosis and related skin types.


Patient Support Forums

These 1-day meetings are filled with medical information, networking, sharing about product ideas, and skin care routines.  The meetings will include a light breakfast, lunch, and childcare for families with children. 




Are You the FIRST to Know?

The FIRST to Know conference calls are a great way to “meet” other families and individuals.  Sharing tips, stories and challenges makes living with ichthyosis easier.  All calls are held in Eastern Time, and are phone calls only, so you only need a phone, not a computer.

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