Conferences, Forums & Meetings

    San Diego here we come! June 24 - 26, 2016
(click here for all of the conference details and registration information)

San Diego Marriott Mission Valley

8757 Rio San Diego Drive
San Diego, CA  92108

Room Reservation Information

Room rate is $189* per night ++.

Follow this link to make hotel reservations:

*The hotel is still honoring the shoulder dates of June 19 through June 22 and June 26 through June 29 at the $129++ room rate until those room blocks fill. When making your reservations including any of those dates, the discounted rate of $129 will be modified by the group sales manager internally and will be reflected on your final bill. The dates of Thursday, June 23 – Saturday, June 25 will be billed at $189++.

Register online to attend the 2016 National Conference-San Diego


National Conferences

FIRST hosts a 3-day national conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.

National Conferences are a fantastic opportunity for affected individuals and their families to meet and network with other affected individuals and consult with leading medical experts.  They connect those searching for information and support in living wih ichthyosis and related skin types.


Patient Support Forums

These 1-day meetings are filled with medical information, networking, sharing about product ideas, and skin care routines.  The meetings will include a light breakfast, lunch, and childcare for families with children. 




Are You the FIRST to Know?

The FIRST to Know conference calls are a great way to “meet” other families and individuals.  Sharing tips, stories and challenges makes living with ichthyosis easier.  All calls are held in Eastern Time, and are phone calls only, so you only need a phone, not a computer.

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