Founded in 1981To improve lives and seek cures for those affected by ichthyosis and related skin types.
San Diego here we come! June 24 - 26, 2016
San Diego Marriot Mission Valley
8757 Rio San Diego Drive
San Diego, CA 92108
Room Reservation Information
Room rate is $129 per night ++.
Here is the link to make reservations: https://resweb.passkey.com/Resweb.do?mode=welcome_ei_new&eventID=14107342
Group Reservations Toll Free: 877-622-3056
Group Reservations Local Phone: 619-692-3800
FIRST hosts a 3-day national family conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.
These 1-day meetings are filled with medical information, networking, sharing about product ideas, and skin care routines. The meetings will include a light breakfast, lunch, and childcare for families with children.
Are You the FIRST to Know?
Dates and topics are scheduled for the 2015 calls. The FIRST to Know conference calls are a great way to “meet” other families and individuals. Sharing tips, stories and challenges makes living with ichthyosis easier. All calls are held in Eastern Time, and are phone calls only, so you only need a phone, not a computer.