Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
FIRST hosts a 3-day national family conference every two years. This is FIRST's premier event open to all members of the Foundation. Traditionally the location for the conference moves across the country each time the conference is held.
These one-day meetings are filled with medical information, networking, sharing about product ideas, and skin care routines. The meetings will include a light breakfast, lunch, and childcare for families with children.
Are You the FIRST to Know?
Dates and topics are scheduled for the 2014 calls. The FIRST to Know conference calls are a great way to “meet” other families and individuals. Sharing tips, stories and challenges makes living with ichthyosis easier. All calls are held in Eastern Time, and are phone calls only, so you only need a phone, not a computer.