Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
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'Can Do' Volunteer
Foundation member and Georgia resident, Donna Clare, solicited Atlanta businesses and merchants for donations to the Foundation National Family Conference held in Atlanta this summer. Not only did Donna receive so many donations that almost every family attending the conference went home with a door prize; she also acquired a lovely array of prizes that went into a cash raffle. Lucky winners went home with a beautiful gold bracelet, a Razor scooter, hair care and accessory basket, or a one-week stay in a Florida condominium. The raffle proceeds totaled $1,254. Donna is the proud grandmother of Grace, who is affected with lamellar ichthyosis. We found out the Donna's nickname is "Donna Do." She and all our other grassroots volunteers are great examples of what the power of one person can do. The Foundation, its staff, and the Board of Directors are very grateful to all of these volunteers for their hard work and generous contributions.
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