Robyn S. gave birth to a happy, healthy daughter, Geordyn Lily, on June 28, 2010. Geordyn was born with a collodion membrane. It was later determined that Geordyn has congenital ichthyosis. Dr. Marvin Trotter, of the Ukiah Valley Medical Center, where Geordyn was born, conducts a show on KZXY in Mendocino County, California. He asked Robyn and her mother, Lynn, a physician’s assistant and midwife, to appear on the show to discuss ichthyosis. Lynn is very proactive in her community and is well-known for her fundraising and charitable events. Robyn, who is a Registered Nurse, and her mother spent an hour on the radio show Mind, Body, & Health on a Tuesday morning in January and did a truly fantastic job speaking about ichthyosis and often promoting FIRST. The family is planning on attending the 2012 National Family Conference in Denver with their beautiful little girl who is the light of their lives.
You can listen to the entire program via this link to the KZXY Program Archives.
| CBS Super Screen in New York City FIRST was offered an opportunity to place a 15 second advertisement on the CBS Super Screen strategically positioned at 42nd Street between 7th and 8th Avenues in the heart of the Times Square Plaza, "The Gateway to New York." Our advertisement ran every hour beginning on December 15, 2011 and continued until January 15, 2012. Estimates are that one million people each day will be traveling past the Super Screen. This is a fantastic opportunity to generate awareness about ichthyosis and FIRST! FIRST members who traveled in New York City during the holiday season, were excited to see our advertisement. |
You can view FIRST's ad here.
« Back to Previous Page