Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
2014 has been a great year on a grassroots level! Click on an event to read about the hard work of our members.
|Superhero Cape Dash||Tiny Superheroes T-shirt sales||Jeans Day||Chick-fil-A Event|
|FIRST Night at Gladiators||FIRST Night at the Mets||Beach Run||FIRST Day at the Pirates|
|FIRST Night at the Nationals||FIRST Day at the Astros||FIRST Day at the Royals||FIRST Night at the Red Sox|
|Online Apron Sale||Wine Tasting||FIRST Night at Indianapolis Indians||Thirty-One Gifts|
|FIRST Night at the Cleveland Indians||Friends for FIRST Concert||Release the Butterfly Concert||Car Show|
|Bracelet Sales||Monster Dash||Tea Sales||Chicago Marathon|
|Beach Bonfire & Yoga||Volleyball Tournament||Shop with Santa||Pumpkin Paint|
|Caravan Bead Event|