Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
|Zumba Classes||Volunteering||Jeans Day||Family Game Night|
|Information Table||Art Show||Teachers Campaign||Jeans for Genes|
|Chick-fil-A||Beach Run & Walk||High Heels & Handbags||Josh Ridings Concert|
|Golf Tournament||Cabaret Night||Restaurant Evening||FIRST Night at the Mets|
|FIRST Night at the Phillies||FIRST Night at the White Sox||It Makes Cents Campaigns||Wine Tasting|
|Dinner & Silent Auction||Release the Butterfly Concert||Friends 4 FIRST||Retirement Gift|