Celebrating Our Anniversary
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
2008 and prior Grassroots Events
- 5K Road Races - New York (2008)
- Basketball Tournament - Kansas (2006)
- Bicycle Marathon - Florida (2006)
- Bid for a Cure - Georgia (2004)
- Bid for a Cure - Georgia (2006)
- Boston Marathon - Massachussetts (2001)
- Bowl-a-thon - Minnesota (2001)
- Breakfast with Santa - New Jersey (2008)
- Business Donations - Georgia (2006)
- Country Music Benefit - Texas (2007)
- Crawfish in the Park - Texas (2007)
- Golf Outing - California (2006)
- Golf Outing - Illinois (2006)
- Golf Outing - Pennsylvania (2004)
- Golf Tournament - California (2006)
- Golf Tournament - New York (2008)
- Grant Writing - Ohio (2006)
- Ice Cream Event - New York (2006)
- Project Save Our Skin - Texas (2006)
- Release the Butterfly - Michigan (2007)
- Scrapbooking Crop - Illinois (2008)
- Yard Sale - California (2008)