News and Events

Calendar of Events

Beach Run & Walk
May 07, 2016 • Lido West Beach, New York
Beach Run & Walk
Wine Tasting
May 14, 2016 • West Caldwell, New Jersey
Wine Tasting
Release the Butterfly CD Release Party
May 14, 2016 • Johnsonburg, Pennsylvania
Release the Butterfly CD Release Party
Wine Tasting
May 21, 2016 • Lansdale, Pennsylvania
Wine Tasting
FIRST Day Out with the Pittsburgh Pirates
May 22, 2016 • Pittsburgh, Pennsylvania
FIRST Day Out with the Pittsburgh Pirates
National Conference
June 24 - June 26, 2016 • San Diego, California
National Conference
FIRST Night Out with the New York Mets
June 30, 2016 • New York, New York
FIRST Night Out with the New York Mets
Ichthyosis Patient Picnic at Northwestern
September 10, 2016 • Chicago, Illinois
Ichthyosis Patient Picnic at Northwestern

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